An Update on Me, From Me

There has been quite a weight lifted off of our shoulders due to my recent exciting news!

After months of 7 hour infusions, of Amphotericin, the 12 fungal nodules on my lungs have had 100% recovery. NO more infusions! Instead of infusions, I am now taking an oral anti-fungal pill form to continue to protect me from fungus. I am jumping for joy because I no longer have to have my port accessed 24/7. I haven’t been able to be fully submerged in water for a year. Now that I do not have my port accessed all of the time, I can comfortably enjoy more activities without the stress and worry.

In the time that I have not been blogging my body has been recovering from finishing up the last phase of chemo before I start Maintenance. It seems to be taking a lot longer to recover after receiving chemo, which is very common during this time. After a year of fighting I have finally made my way into the Maintenance phase! In this phase I will continue to take oral chemo, have routine labs done every two weeks and have a spinal tap with intrathecal chemo every three months until the end of my treatment. The hardest parts of my treatment are long behind me now. The rest of my treatment should be a piece of cake. Now I am not saying that it will be all puppy dogs and rainbows but my doctors keep telling me that this will be a breeze compared everything else I have done up to this point.

This has been quite the ride, but things seem to be looking up for me now. If all goes well I will fly through Maintenance and I will be completely done with treatment around December 2017. To stay in remission, I have to maintain a balanced mind, body and spirit. I need to pursue activities that energize and strengthen my body. I have to eat foods that are healthy and full of cancer fighters. It is also important that I keep my mind sharp. Mind over matter. The only way I will stay in remission throughout the rest of my life is to stay on the self care train, and take care of myself properly. My body is a temple, I am going to treat it like one.

This past year has been a roller coaster, and now everything seems to be leveling out. I will be enrolling back into school. I will be getting my drivers permit soon! Most importantly, I will be able to be a teenage girl again.

I am truly blessed that my life is starting to get back to normal. My new normal.

Thank you Faith’s Army for all of the love, support and prayers! Please check out our GoFundMe page. I hope everyone is doing well!


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